Archive of ‘Megacystis Microcolon Intestinal Hypoperistalsis’ category

TRANSPLANT STATUS|THE JOURNEY CONTINUES

I need to premise this post by saying it is very different than most of my blog entries. It is, intentionally, much more medical than what I usually write about, however my purpose is different. Of course I hope people who love Belle and whom are interested in her journey will read because, quite frankly, […]

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CULTIVATING A SPIRIT OF JOY | AND, FINDING HER “APPY”

“This girl is just so happy,” I said to my husband, laughing. Our smiling, bouncing toddler turned and looked me square in the eye with her cheeky, toothy grin and squealed, “Appeee! Appeee!” Joey and I looked at each other, mouths dropped. “Did she just say happy?” he asked. Upon hearing her new word, specifically, […]

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BELLE’S BASH|AND, REFLECTING ON 2017

KICKING MY BUTT I’m a bit ashamed of myself that it has taken me over 2 months to write about the amazing event that happened in our lives on Oct. 21st. The truth is, life has been absolutely kicking my butt over the last few months. I really mean that in the best possible way. […]

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What Just Happened? | And, Laying Down My Control

WHAT JUST HAPPENED? I’m still processing the events of the last three weeks. Still trying to find meaning in it all. Still trying to see the beauty in ashes, because I’ve learned it always exists. The short of what happened with Anabelle a few weeks ago is that after a seemingly normal day, I started […]

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BELLE’S “BEAT THE ODDS” BIRTHDAY BASH | AND YOU’RE INVITED!!!

  A YEAR IN REVIEW A year old? Did that really just happen? Only ONE overnight in the hospital after our initial stay? Are you kidding me? Speaking of our initial stay, they told us 2-6 months and we checked out the day she turned two months old! Is this for real? ZERO fevers, ZERO […]

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